Improving the Patient Experience and Health Outcomes Collaborative (iPEHOC)

Background: This project aims to develop a common patient reported experience measurement system (PREM) and patient reported outcome measurement (PROM) system applicable to all jurisdictions in Canada, with the goal of reducing symptom burden and improving the patient experience.
The Knowledge to Action (KTA) framework guides this project. In this framework, research results are synthesized and refined into products standardized tools (i.e. ESAS). In the action cycle, knowledge products are adapted to local contexts, barriers to knowledge use and interventions to address them are implemented, knowledge use is evaluated, and steps are taken to sustain knowledge use. At the Juravinski Cancer Centre the project will be implemented at the Cancers of the Central Nervous System and Gynecological Cancer disease site teams.
1. Implementation of routine clinical utilization of patient-reported measurement indicators, including:
a. Symptom screening and core PROs for fatigue (Cancer Fatigue Scale), pain (Brief Pain Inventory), anxiety (Generalized Anxiety Disorder scale) and depression (Patient Health Questionnaire).
b. PREMs that assess dimensions of physical comfort, emotional support, access, information and communication, coordination and continuity.
2. Engagement of health care providers in the integration of PROs to support communication with patients, treatment decision-making and the activation of patients for self-management.
3. Evaluation of the impact of the iPEHOC measurement system on patient satisfaction and health outcomes, health care provider satisfaction and health care utilization as quality performance indicators.
4. Use of active knowledge exchange methods to facilitate pan-Canadian uptake of the iPEHOC
measurement system.
Anticipated Immediate Outcomes:
- Reduced symptom severity and distress
- Increased person-centred communication and collaborative team working
- Increased in patient activation which refers to knowledge, confidence and abilities required for day to day management of health care concerns
Anticipated Long Term Outcomes:
- Standardize PRO and PREM use in cancer populations across Canada
- Reduce population rates for urgent care and acute care hospitalizations related to symptoms
For more information, please contact Denise Bryant-Lukosius at This e-mail address is being protected from spambots. You need JavaScript enabled to view it